Myeloma UK HCP Hub – Code of Conduct

At Myeloma UK, we are dedicated to providing a professional and supportive environment where healthcare professionals (HCPs), researchers, and academics can collaborate, share insights, and engage in meaningful discussions related to myeloma care and research. The Myeloma UK HCP Hub is designed exclusively for these groups. If you are a patient who also works in one of these roles, we encourage you to manage your own exposure to the content, considering that some discussions may be emotionally challenging.

Who this site is for

This site is intended solely for healthcare professionals involved in the treatment and care of myeloma patients. It is not suitable for patients or the general public. If you are a patient who also works as an HCP, please be mindful that the content on this platform is intended for professional use and may include sensitive discussions regarding clinical practices, treatment pathways, and patient outcomes.

Myeloma UK’s responsibility

While we strive to maintain a professional and respectful environment, Myeloma UK does not actively moderate discussions or contributions made by users. We encourage open and transparent communication, but we do not assume responsibility for the views expressed by participants. We trust our users to engage responsibly and respectfully.

User responsibility

As a healthcare professional, researcher or academic engaging on this platform, you are expected to uphold the highest standards of conduct. Please:

  • Respect confidentiality: Do not share identifiable patient information. Always obtain proper consent before discussing or sharing any clinical experiences that may contain patient data.
  • Professionalism: Engage in discussions in a respectful and professional manner. Avoid offensive or inappropriate comments that could reflect poorly on your role or workplace.
  • Confidential discussions: The platform is intended as a safe space for professional discussions. What is shared within the platform stays within the platform. Do not repeat or share any content outside of this space, particularly sensitive information discussed by your peers.

Conflict of interest

Users are expected to disclose any potential conflicts of interest, including financial relationships or industry sponsorships, that could impact their contributions to discussions. Transparency is key to maintaining trust within this community.

Respectful and inclusive environment

All users are expected to contribute to a respectful and inclusive environment. Discriminatory, offensive, or inappropriate language or behaviour, including on the basis of gender, race, ethnicity, or any other personal characteristic, will not be tolerated. We are committed to fostering an environment of mutual respect for all participants.

Data usage

Respecting patient confidentiality is paramount. Avoid unnecessary sharing of personal or health-related data. If discussing best practices or case studies, ensure you have obtained appropriate consent from any parties involved and de-identify any patient information to maintain privacy. Misuse of patient data or failure to respect confidentiality could have serious professional and legal implications.

For further details on how we handle your data, please refer to our Privacy Policy.

Wellbeing and safe space

We recognise that some HCPs on this platform may also be patients or carers, and that certain topics could be emotionally challenging or triggering. We encourage all users to take care of their own wellbeing when engaging in discussions. If you find any content distressing, please consider stepping back and looking after your mental health.

Encouraging transparency and respect

This platform is intended to foster open, honest, and productive discussions among HCPs. In the spirit of transparency, we encourage all users to feel comfortable sharing their experiences and insights without fear of judgement or breach of confidentiality. To ensure this remains a safe space for all, please refrain from discussing what is shared on this platform outside of the professional community here.

Intellectual property

Respect intellectual property rights. When sharing research or third-party content, ensure proper attribution and avoid sharing proprietary or copyrighted materials without permission. Content should be used for professional discussions and not for commercial purposes.

Consequences for violations

Breaching this Code of Conduct may result in warnings, restricted access, or removal from the platform, depending on the severity of the violation. We are committed to maintaining a safe and professional space for all users and will take appropriate action to address misconduct.

This Code of Conduct was updated on 15/10/2024.