Financial concerns
Living with myeloma can affect many areas of patients’ and their families’ lives. As well as concerns about their physical health, patients may also worry about various other aspects of everyday life. Financial worries are often at the forefront; many patients need to take prolonged time off work for hospital appointments, treatment, periods of ill-health, and in some cases some patients may decide to resign or take earlier retirement than previously planned.
It is important to be aware that sometimes it is the partners and family who carry the burden of financial worries. They may not be able to work because of caring for and supporting the patient or because they have to manage on a lower income. Family members may also find themselves in new roles managing the finances and running the home, further adding to their financial worries.
Nurses should discuss the fact that financial circumstances may change as a result of a diagnosis of myeloma with patients and their families. They should provide information and resources for further help and advice and recommend patients:
- Speak to their employer
- Discuss their pension plan
- Seek advice about their mortgage/pension
- Find out what benefits and allowances they are entitled to
It is important to note that benefits and welfare systems constantly change so nurses must ensure that they are providing as up-to-date information as possible. In some cases, it may be appropriate to refer patients and carers to social services, for additional help and support, or signpost them to independent financial advisors. Read more about current advice to patients seeking such support in our Managing your finances (benefits) Infosheet.