Introduction
Following a diagnosis of myeloma, patients are faced with the shock of having a cancer that is not curable as well as having to deal with treatments and treatment side effects. They may also worry about how myeloma will affect them and their ability to “live a normal life”, care for their family and home, hold their job and continue the friendships and activities they enjoy. A diagnosis of myeloma can therefore have a huge impact not only physically but also psychologically, spiritually, socially and financially.
Supporting patients and their families throughout their experience of living with myeloma journey requires input from a number of teams, and this will differ from person to person and over time, depending for example on where a patient is in their treatment or remission. Continuity of care between the hospital and the community is key to ensuring patients feel supported at all times, as in some cases it is the quieter and stable moments when patients feel most anxious. A number of healthcare professionals in both hospital and community settings have a responsibility to ensure patients are supported during treatment and when at home. The role of the patient in managing their own health and flagging new symptoms or when they need further support is also key.