Coping with pain

Physical pain can be a significant factor for patients with myeloma which not only affects the body but can also have a psychological impact and affect how patients feel emotionally. In particular, chronic pain can cause frustration, anger, fear, poor concentration and sleep deprivation.

It is important nurses spend time to talk to patients about their pain and to encourage then to be open and honest about the level of pain they have and how much it is affecting their everyday activities. This will determine the most appropriate pain management plan for patients but in some cases, it may be necessary to refer them for treatment with the palliative/supportive care team.

Whilst medical treatment such as anti-myeloma treatment, analgesics, radiotherapy or surgery will relieve pain, nurses can encourage patients to explore other ways of managing their pain:

• Ensure patients understand the importance of complying with medical treatments/analgesics, to take them as prescribed and where there are no contraindications.
• Discuss the potential benefits of non-medical treatments that may help relieve pain including: acupuncture; transcutaneous electrical nerve stimulation (TENS); gentle massage; hot and cold compression packs; gentle exercise.
• Teach patients different ways to relax or refer them to someone who can: meditation, visualisation, relaxation or a combination of these therapies can be helpful in relieving pain.
• Introduce the idea of distraction therapy, for example, watching TV, listening to music or engaging in a hobby to take the focus away from pain for a short time.
• Educate patients on the importance of good posture and correct body positioning. Teach them to position their body and use supportive aids such as V-shaped pillows so that they are more comfortable. Physiotherapy teams may assist with this.
• Discuss the importance of rest and help patients devise plans that achieve a balance between regular rest and activity. The occupational therapist may assist you with this.

Watch this video in which a patient with myeloma talks about living with daily pain and, despite severe kyphosis (curvature of the spine), his remarkable journey back to playing with the Bournemouth Symphony Orchestra following his diagnosis: